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Dedicated October 2019

Dad just diagnosed with cancer

Dawn, on June 21, 2019 at 4:23 PM Posted in Family and Relationships 0 8

Long post: please skip if you wish, stay and read if you wish.

Hi everybody. I haven't been here in a while. I guess I'm just seeking some support. On May 31st, my mom took my dad into the ER with a terrible stomach ache. He had this belly ache for some time, weeks or months, and never said anything until he just couldn't handle it anymore. I think he decided to get it checked as my little brother's wedding was out of town the next day and he didn't want to be uncomfortable at the event. Anyway, my dad called me around 12:30am on his way home from the ER and said the doctor suspects colon cancer that has affected the liver. The next day we attended my brother's wedding and never spoke a word about it. He shared the news with close family on Sunday.

(Background health: he had a deadly bout with ulcerative colitis when I was 4, so 30 years ago. It almost killed him, but he pulled through and has been the picture of health as long as I can remember. However, he never had the annual or 5 year check ups as he's just the type to not go to the doctor until something is wrong and he actually needs help or relief.)

A quick rundown from the last 21 days...the following week it was confirmed 4th stage colon cancer via colonoscopy, a PETscan was done on Monday the 17th showing even more spots of cancer in his belly area, liver and colon, and this last Wednesday, the 19th, he had his first round of chemotherapy. The morning after chemo, my parents called to chit chat about something or another and dad sounded like he was feeling better, able to eat a little breakfast, etc.

I'm angry. I'm angry because he has eaten the rainbow everyday, doesn't smoke, rarely drinks, and is the type to choose salmon over steak, and still gets slapped in the face with this. He has 6 kids and 3 of them leach off of him and show no respect. NOW they are sad and I'm angry that they feel they can cry over this situation and try to tell me how to spend my time with him and what I should be doing for him. I HAVE been there, but where have they been?? One is an alcoholic who hides out all the time, another is a drug addict who is down right mean to him, and the other is a narcissist who recently told my father that he doesn't want him at his house anymore, before all of this, of course. My mom said that broke my dad's heart. There's a lot of backstory to all of these that not enough time will allow. I'm angry because he's waited his whole life to retire and now he has been forced to take FMLA to be home and be sick and possibly die. He's 65 years old and has worked his a** off for our family and others his whole life and this is how life is taking him out. I am getting married October 26 this year and have ALWAYS looked forward to having a wedding so my dad can walk me down the aisle. Wedding aside, what if he's not able to even walk by then? I don't care about the wedding, honestly. I would move it up to tomorrow and get married in their living room if I had to.

I have never wanted kids of my own. I'm not sure it's in my DNA. I love kids, but in small doses. My dad has always said "never say never" and talked of the benefits of having children, and I have always pushed back. If I knew how much time he had, I would most definitely have one right now. Just to see him smile.

I would most definitely call myself a daddy's girl and say it LOUD and PROUD. What kid doesn't want to feel like they have made their parents happy? I think I live for that feeling from my parents, especially my dad. With some of my siblings being crappy their entire lives, I have always tried to do the right thing just to see my parents smile from time to time. I hope I have done that at least once in my life. It's too early to tell how things will go, but I feel like, what's the purpose of anything anymore if I can't have my dad there to nod his head in approval. I love my dad. ALWAYS have. Of course there were the nasty teen years, but eventually you learn that your parents are not your enemy, but your greatest friends you never realized were ALWAYS there no matter what. Why does it take us so long to realize this? They have been and will always be my best friends and greatest cheerleaders.

Looking back on heartbreaks, his advice was "follow your head, not your heart". When I had a terrible acne breakout as a teenager, his advice was "just roll with it". He just made things feel better. Still to this day, when I get a pimple, I think to myself "just roll with it". lol. Periodically, in the terrible teen years when I would lock myself away in my room, he would casually come into my room and sit on the edge of the bed and create chit chat to see if anything was wrong. I just stayed in my bedroom of course. I should have joined my folks for a movie or just gone upstairs to hang with them.

He has been told that there will be no surgery, no cure, it's terminal and that chemo is only buying him months to live. Months on top of what? 6 months? a year? 5 years? My mom was told that if chemo does it's job and the cancer shrinks, he could be sent to Mayo Clinic to have part of his liver removed as they won't do it here. This is the only hope I am holding onto right now. Regardless, he is still dying.

What do I do? How do I continue with life?

Make no mistake, I'm not thinking of the unthinkable action, I'm just so full of sorrow and sadness and can't picture life any other way than the way it's been for 34 years.

8 Comments

Latest activity by Andrea, on August 20, 2019 at 11:03 AM
  • Furture Mrs. G
    Expert September 2019
    Furture Mrs. G ·
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    Our fathers are our heroes. I totally get it. My dad got custody of my 2 sisters and I at a very young age... He went on to raise us with the help of his mom and dad. He has been so strong and such a great provider. Now I am planning my wedding and I was sooooo excited for the moment to have my father/my hero walk me down the aisle. Well in April an explosion happened at the chemical plant that he worked at and now he is suffering from PTSD. He had went to the doctor a few months before due to other health issues and now his neurologist is saying he could possibly have frontal lobe dementia. I am like whhhhhat! This is my dad. This man was untouchable (to me any way). I talk to him on the phone and two hours later he doesn't even remember talking to me.

    They cannot diagnose him until they get a PET scan. But, I will tell you, this has been the scariest moment of my life. To even think about losing my dad I couldn't bear. He is my parent my only parent. I just couldn't imagine.

    I haven't opened up about this to anyone- I saw your post as a perfect chance.

    You and your family have to help him fight the fight. Ya'll have to be by his side though all the pain.

    I don't know you but, I will lift you and your family up in prayers.

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  • MrsJohansson
    Expert June 2019
    MrsJohansson ·
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    I'm really, really sorry.. I dunno if I can give the right answer but I'm going to try to offer something. My father recently passed from a long battle with a rare form of cancer.. the subtype has never been seen before so even the top specialists in Canada didn't know how to treat it. He tried a few trials but ultimately made the decision to not try the last treatment available (significantly weaker than the others).

    The news you got is incredibly hard to take in. As someone who has been in a similar situation - both in having a tough life and losing a parent to sarcoma - I can only urge you to spend as much time with your father as you can. Talk with a counsellor who is specialized in grief or bereavement counselling. Try to talk about other things with him than cancer, anything. Be there for him but also give him space if he asks for it. Support the decisions he makes even if it is not what you agree with.

    I am not sure what else to say.. I'm pretty bad at this cause the topic is just so close to home and still raw. Please take care of yourself and be there as much as you are able to for your dad. You will get through this.

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  • latasha
    VIP September 2019
    latasha ·
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    Girl I can totally relate. I lost my father a month before I got engaged. He’d been sick for a while but we still were not expecting him to die. He went in for a normal procedure and just never came out. My heart ACHES thinking about how he won’t be able to walk me down the aisle and my kids will never have the pleasure of knowing him. We were able to shortly grieve for about 3 months and then my mother was diagnosed with Cancer. Surgery...cancer still spread, radiation....cancer still spread, chemotherapy and it has shrunk but she will always have the cancer. I have watched my mother in pain, sick, losing an insane amount of weight, crying, in a dark place, coming to terms with shaving all of her hair off when it no longer was healthy enough to keep, losing eyebrows, you name it. Most brides get to worry about flowers and cake when all I worry about is will I have a living parent make it to my wedding. I get your pain, the anger, the heartache, the annoyed feeling of all these people now seeming to care. The only thing I can say to you is you have to get yourself out of those feelings because you will drive yourself mad and suck every happy thing out of your life and everybody else around you. Enjoy the time you have with your loved ones. People react to things differently. This may be a wake up call for your siblings to get their acts together, this also may bring your family closer (you’d be surprised). Your dad was heart broken that his other children treated him that way. Hopefully they can apologize for those things and he can feel their love through this. Sucks for you but good for your dad and honestly making his life pleasurable is really what matters mostly. Please please please don’t spend your time holding on to this anger but replace it with positive thoughts and hope. That is what you need, that is what your family needs and most importantly that’s what your dad needs right now. If you ever need to talk please DM me. I cannot explain to you how much I understand how you feel.
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  • D
    Dedicated October 2019
    Dawn ·
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    Thank you for your kind words and sharing your story. "Our fathers are our hero's" in 100% on the nose. They may not ever think that way of themselves, but their children recognize it if they are lucky. I'm sorry to hear of your fathers potential dimentia. That's terrible. Here's this man in front of you that you love and one day he may not recognize you? My heart aches for you. We know our parents should never outlive us, but it's still soooo hard, and too early. Prayers for you.
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  • D
    Dedicated October 2019
    Dawn ·
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    Thank you so much! I'm so sorry for your loss. I think I may look into the counseling. Sure, co-workers and other family members are available to talk anytime, but it still hurts so much. I'm finding myself welling up with tears out of nowhere and have had a couple of breakdowns, alone. Thank goodness.
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  • Melissa
    Devoted May 2021
    Melissa ·
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    I’m so so sorry! I can’t say I’ve been in this situation but what I can say is live for the memories now. Give him great memories to take with him and keep with you. Good luck through this next battle in your life! I’ll keep your family & you in my thoughts & prayers.
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  • D
    Dedicated October 2019
    Dawn ·
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    Update: August 20, 2019. My husband and I were married at essentia hospital on July 25, where dad had been for 3 weeks at the time. His colon had ruptured and needed emergency surgery just to keep him alive on July 8. There was talk of him going home here and there, but his infections and cancer were just too much. The surgeon told us it was the worst cancer he had ever seen during dad's July 8th surgery, and that we would be lucky to have another couple of weeks with him. He improved, only to get worse, and improve again, but eventually the infection kept him in the hospital. It got to the point where we were called in to say our final goodbyes on Tuesday, August 6, and all antibiotics and feeding tubes were removed. The next 2.5 days are what we considered his "rally days". A person close to death can surprise their loved ones with a few hours to a few days of surprising, energetic behavior. He woke up on Friday morning ready to go home and ate breakfast of oatmeal and a strawberry carnation instant breakfast. He went home at our request on August 9th and passed away at 5:11pm on August 11. From diagnoses to death, it was 72 days. My heart is broken and I miss him so much. We weren't able to talk to him much in the last month due something being wrong with his speach. It was like his tongue was frozen from eating too much ice cream, and he spoke in whispers or just moving his lips. I hope he heard everything that I said to him, although I can't recall what I said exactly anymore. I don't have any pictures yet of our wedding in the hospital, although we did have a photographer friend take some for us. We also still intend on having our reception on October 26.

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  • Andrea
    Master January 2021
    Andrea ·
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    Hey Dawn...

    I can't even imagine what you are going through. Tears are in my eyes after reading. I am really sorry for your loss. Smiley heart Smiley heart Smiley heart

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