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Just Said Yes February 2023

i feel like my wedding is ruined. i want to cry.

Maddie, on October 26, 2022 at 4:28 PM Posted in Community Conversations 0 14

I have a condition called Mast Cell Activation Syndrome (MCAS) that basically makes me allergic to everything when activated. I've basically been in remission since high school, but I always knew it could possibly come back at any time.

Well, it's back, and just in time for my wedding 😭

I can't even begin to describe how this disease has changed my life in just the last two months of it being activated. All my clothes feel uncomfortable. I have gross rashes and hives all over my body that never go away. I can't eat ANYTHING anymore, like I'm basically living off salads without dressing and plain rice and water, but even that tickles my throat and I feel sick afterwards. My eyes are red and always runny. I haven't left the house in almost two months.

We're already locked into several contracts including one for a gorgeous wedding venue that we paid a huge deposit on. We can't afford to lose our deposit we made over six months ago. I just feel so lost and devastated. I do not want to have a wedding right now. I can't even think of how I could possibly participate in this state. I can't eat anything. I can't get ready with the bridesmaids. I will not want to be there and I will probably be crying for all the wrong reasons.

Another thing is insecurity. I've been completely stripped of my makeup, hair dye, hair products, nail polish, skincare, self-tanner, and everything else that used to be part of my daily routine. I used to feel so confident and now I feel so bare and exposed. I don't want anyone seeing me or taking pictures of me like this. Ugh.

We literally have no idea where we can go from here. If we cancel the wedding, we will probably never be able to afford one again and that's been a dream of mine since I was a little girl. If we go on with the wedding, I honestly can't even begin to imagine what that would look like. I'd prefer everyone else have a good time while I watch it on zoom or something honestly. Idk. I'm crying again. If anyone has ideas I'm all ears.

14 Comments

Latest activity by Mrs.evans, on October 28, 2022 at 8:38 AM
  • V
    Champion July 2019
    Veronica ·
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    I've never heard of this but is there any type of treatment? Also how long does something like this last? I see your wedding isn't until Feb is it possible that you could be feeling better by then? Like I said I don't really know anything about this so just grasping at straws.
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  • M
    Just Said Yes February 2023
    Maddie ·
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    There is no "cure" to MCAS, so the only way to fight it is by avoiding everything. It came on suddenly and lasted over two years the last time mine was activated and that's considered a fairly short time as far as MCAS goes. It's very unlikely this changes by February 😭😭😭

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  • V
    Champion July 2019
    Veronica ·
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    Oh no! I did look it up and it does say stress can be a trigger. With how stressful wedding planning is, maybe that contributed to it. It does look like there are some medications that might help
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  • M
    Just Said Yes February 2023
    Maddie ·
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    That's true, stress is a major trigger. I don't see that improving any time soon haha.

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  • V
    Champion July 2019
    Veronica ·
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    I'm so sorry 😔 Unfortunately I don't have any suggestions other than hoping you're better by Feb or maybe speaking with your doctor.
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  • Michelle
    Rockstar December 2022
    Michelle ·
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    One of my best friends has this diagnosis and while it’s been a struggle, she’s finally at a place where she’s happy in life and accepting of her situation. She goes through the same or similar experiences. No advice except your loved ones will not judge you because they want to share your milestone with you. Are there any support groups online you may be able to join? Wishing you all the best and hopefully you feel better closer to the wedding day.
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  • M
    Just Said Yes February 2023
    Maddie ·
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    I've spoken to my doctor. I got two epi-pens (very expensive) and a list of things to avoid but that's pretty much all I can do at this point.

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  • M
    Just Said Yes February 2023
    Maddie ·
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    It really is a struggle! Thank you. There are a few online support groups for MCAS but they haven't been very active from what I've seen. Not to be overly negative, but just imagining my wedding makes me want to cry now. I don't know what to do Smiley sad

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  • Michelle
    Rockstar December 2022
    Michelle ·
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    Your feelings are valid. No real advice other than focusing on the positives and go from there. Get support from fiancé and loved ones.
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  • M
    Just Said Yes February 2023
    Maddie ·
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    Thank you. It seems like everyone I talk to is at a loss unfortunately.

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  • Cece
    Rockstar October 2023
    Cece ·
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    Have you reached out to your vendors yet and explained your situation? I had a similar situation (though not nearly as extreme as yours)- I ended up having to have a major orthopedic surgery shortly before our last wedding date. This surgery left me completely dependent on a walker for over four months, then crutches for another six months. We had signed contracts and given nonrefundable deposit, so I knew it was a longshot. However, every single vendor, aside from our cake baker, was more than willing to reschedule our event under the circumstances. I would reach out to your vendors! You may be surprised at how sympathetic people are in situations like this. Especially in such an extreme case like yours! I know my heart was breaking for you just reading it.
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  • B
    VIP July 2017
    Becky ·
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    I agree with Cece about talking to your vendors - the worst they can say is no. I'm so sorry you're having to deal with this though.

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  • M
    Just Said Yes February 2023
    Maddie ·
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    Thank you, we reached out to some of our venders and it seems possible to reschedule. The only problem is that this disease is usually activated for several years at a time, so I can't know when I'll ever be able to live normally again. It might never happen. There are stories of people being completely bedridden for 5+ years at a time. Although I can still walk normally, I'm definitely in no condition for something like a wedding. I've been avoiding leaving my house even.

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  • Mrs.evans
    VIP October 2022
    Mrs.evans ·
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    Hi I'm sorry that this has happened to you but I have never heard of this but beginning in the medical field I have learned that there are are different types of diseases that we have heard of before but exist. So I think that you should go to dearmalogits and maybe now that they may have a cure or something to maintain it so you can have your wedding. Pray that everything works out for you dear.
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