Hey yall, idk if anyone here has heard of Mast Cell Activation Syndrome but it SUCKS!
It's been 3 years of long covid for me and I still haven't recovered. They say MCAS is like being allergic to the world and that's so true from my experience. Just a short list of the toll it's had on my life and especially my upcoming wedding, I can no longer:
Wear makeup, perfume or hair product
Eat foods with seasoning or anything with that's high in histamine, or anything frozen
Listen to music with instruments because of my tinnitus and hyperacusis
Stand up for more than a half hour without feeling sick
Drink alcohol
Use any sort of fragrance, ie no candles, perfumes, scented deodorant or laundry detergent
Even SUNLIGHT makes my skin turn red and patchy.
I'm trying to keep a positive attitude but this is definitely not what I ever imagined for myself. We've been putting off marriage since 2020 hoping that I would get better but that's obviously not gonna happen any time soon ☹️
