NWR: Ovarian cysts and MRI+Update

Yup, I'm in the ovarian cyst club! I keep begging to have my entire reproductive system removed. So far, no luck. I'm sorry that yours led to a tumor though.

Yep. I've never had one removed, but I get them if I don't take my bc. I also have been on bc for 14 years to control my cysts. They where the most painful thing I have experiemced thus far in my life.

I have ovarian cysts as well. Mine tend to burst though, which causes me extreme pain I was placed on a birth control that actually prevents me from ovulating (which is what causes them to form). That could be something to help?

I've actually been on birth control for a long time. There was a brief 1-2 month period where I wasn't on it and it was during the appointment to get new birth control that I brought up the symptoms again to this newer obgyn office. Can tumors grow that quickly? I think I must've had this for a while because a lot of symptoms I've felt in years past. Not constant, but the pain pops up here and there.

I am so glad you finally got some answers. I have endometriosis and I know the struggle of not feeling good, being dismissed and then they realize oh what something isnt right. You know your body best! I will be praying for you!

I've had them, but mine burst. Unfortunately once that happens and they do the interior ultrasound (in sure there's a more medical way to describe that ultrasound method), there's only fluid left and no cysts. They hurt like a bitch, so I can't imagine all the pain you might be in. Not at all the same, by my aunt had fibroids and was able to have them removed (and be in less pain) and also carry a baby to nearly full term. He's eight now, so just something positive! Best of luck, thoughts and prayers your way!

I haven't dealt with this issue, I have dealt with some other cervical problems, but I just wanted to wish you best of luck today! You will get through this and hopefully they will find a solution for you.

I'm like Ariana. I have endo but it took a while for any treatment to start because my Dr thought it was normal period pain. He prescribed me pain killers which used to help but after a while it just got too bad so he said he thought it was endo and he did a laparoscopy and burned it all out. He also inserted the Mirena IUD which seems to be helping keep the endo away.

Thank you for the well wishes. At least I've finally figured out something and am taking steps! I have the consultation with the obgyn tomorrow morning so I'll post an update...

Yes. Throughout my teens and into early 30's. It was miss diagnosed a few times as appendicitis and was even discussing surgery in the ER when another doctor took a look/gave his opinion. That's when I found out I had cysts. I went to a few doctors and one "highly recommend" I have a hysterectomy. Thank God I kept searching. I have 2 awesome kids.

So frustrating, so very very painful, and I felt so dismissed by the medical community. When I found a doctor who listened and took the time to thoroughly exam me, using every tool available to him, I stuck with him.

I am so sorry you are dealing with this. You are in my thoughts today. Best wishes Rae.

BTW, my cysts completely disappeared after my first pregnancy. ???

I have really bad cysts. I have the nexplanon implant and I'm on oral birth control to try to manage my cysts. I'm very worried they are going to make getting pregnant very hard. Don't stress about it! It only makes it worse..

Jennifer, I could feel/tell when they burst too. It was absolutely crazy.

@Nancy, yeah I'm concerned about being able to get pregnant too. I'm not even looking to soon but what's happening is discouraging. I'm hoping for a solution so that it can still be possible in a few years.

@Kathleen yeah, it's amazing how dismissed these issues are! When I did more research on cysts, they can cause so many abdominal issues and I'm wondering if other pains I've felt are side effects of these!

Yes & how between endo/obgyn/gp it is like a weird shared responsibility. They really have to all work together. Not sure how mine compare to yours but my OBGYN said not to worry about getting pregnant and maintaining a healthy lifestyle & weight is your most important job regarding this. You don't look like you have any issue w this but she said even 5-10lbs over a healthy weight makes a huge difference.

I'm so sorry you're going through this and it makes me so angry. I experience the same issues with doctors dismissing my concerns and I'm losing my mind over it. About seven years ago I found a grape size lump in my breast. I had a mammogram and biopsy. It's a fibroadenoma, but I have more that I've found since then and they are very painful. No doctor since has felt it necessary for me to have a mammogram because of my age and they won't approve it for insurance even though I've requested. I'm terrified that more could be wrong and my grandmother did have breast cancer but try getting a doctor to care...

I've had cysts on my ovaries since I was 15. Sometimes the pain I experience is so bad I have to stop what I'm doing and sit or find a couch to crash on. I wouldn't worry too much until you know something. Birth control pills have definitely helped keep my cysts small so that may be an option for you.

Wow, I was scrolling on my newsfeed and Buzzfeed released this very timely video "Times My Doctors Didn't Listen to my Pain." Most of the women had gynecological problems. https://www.facebook.com/BuzzFeedVideo/videos/2308612209279648/

I've had TERRIBLE period pain since I was 16. I always had the feeling something was wrong but no one ever really looked into it. Earlier this year I got pregnant and they found a cyst while doing my ultrasound. I'm not really sure if the two things are related but it wouldn't surprise me.

Anyway, I didn't have a hard time getting pregnant (we weren't trying) and I have not had any complications because of it - I can't even feel it. My doctor said a lot of times they'll go away on their own but I'm very glad your doctors have an eye on it and you'll be getting some answers!

Yes. I had ovarian cysts when I was in my early 20's. One day, they all burst. That wasn't fun.