NWR: Ovarian cysts and MRI+Update

I am so sorry you are going through this. I now have cysts as a result of my infection/emergency surgery. I had the mirena (IUD) and it bridged an infection into my cervix causing PID. It went untreated for 3 months, and I even went to the ER because I hadn't had a bowel movement in two weeks. They did a CT scan and told me it was viral, take a laxative and sent me home. Two days later, I couldn't walk and had a bright red hot spot on my lower abdomen. Back to the ER, and they found a 6cm by 4cm mass on my right ovary. It was not cancerous but actually an absest from the infection. If I had waited 3 more hours, I would have gone septic (the mass was why I wasnt having a bowel movement as it blocked my small intestine). I now have scarring and they had to remove one of my tubes. Luckily, my cysts have burst each month so far, but it is extremely painful. I knew something was wrong and I didn't speak up. I now only have one tube and have scarring all over my entire system, which adds to the cysts.

I really hope you can get some answers and help with dealing with them. Make sure you keep asking every question you think of even if you think "it dumb". I wish I had done that. They are very painful. God speed to you!

Uterine fibroids run in my family and I've already been diagnosed with them but mine aren't bad enough to need surgery thank goodness. I take bc pills and that helps keep them at bay for now but it's only a matter of time - literally every woman on my mom's side of the family has them bad. I feel for all you women out there with lady time troubles

I had pelvic pain for MONTHS until back in May they found cysts on each of my ovaries. Mine rupture and twist, it's horrible. I have opted out of hormone therapy and just stick to regular birth control because of the side effects of the hormone therapy. Good luck! I'll keep you in my thoughts.

@JGCT do you mean a transvaginal ultrasound?

I had one massive ovarian cyst removed two years ago. It weighed 10 pounds and contained 4 liters of fluid. It was incredibly scary but like they told you, not likely cancerous because of my age. A blood test CA 125 also confirmed this before the surgery, and afterwords all my pathology reports were negative for malignant cells. I lost an ovary in the process but it all turned out okay- I am still able to have kids in the future and have no lasting effects.

Sending all the positive vibes your way! You'll get through this!!

Hi all thanks a lot for your well wishes. My MRI results still haven't come in yet but the doctor is pretty sure it's endometriosis based on all of my symptoms and I'll definitely have to have surgery in the coming weeks to remove both of the large cysts and endometriosis. She said that we won't know if we need to do more testing on the tumor until I get my MRI back. I've been anxious all weekend. .

Yes, they found a 2cm ovarian cyst at the time I was diagnosed with PCOS. It doubled in size in a three month time period and was causing lots of pain, so my gynecologist insisted on an MRI to get more info about the cyst (mainly, what material was it filled with). The results showed it was likely filled with blood and was benign. Over the next three months, I suspect it continued to grow, as the pain got worse. At that time, I was flying home from grad school to visit my parents and see my doctor. They were talking about removing it surgically. The day I flew home I was in so much pain, I could not even walk through the airport (thank goodness for moving sidewalks in airports!). I felt like someone was using my lower abdomen as a washcloth and was wringing me out, or like someone had put a pole through me and was roasting me on a spit. After I got home, I went for an ultrasound and there was no more cyst. It had burst and I hadn't realized that's what was happening while I was in the airport.

I had started taking hormonal birth control to regulate my period for the PCOS, and I have only had one small cyst since. Occasionally I go through periods where I have random abdominal pains that don't necessarily coincide with my menstrual cycle, but nothing like what I experienced from that one cyst.

I hope you get good results back and that the MRI provides your doctor with useful information in diagnosing you and coming up with solutions for you.

Hi OP. I feel for you! I was diagnosed with endometriosis when I was only 19. I have had numerous surgeries to take care of it. During one of the surgeries, they found both my ovaries were loaded with cysts. I still occasionally get them and they rupture on their own. Luckily my endo has resolved itself. It was a long road but aside from the random occasional cyst, I am okay now at 33. Good luck! You'll feel better immediately if they do take your cysts out.

Well, got my results back and apparently they think the cysts burst, which would explain a great deal of pain I had! But the MRI didn't show anything concerning anymore, so I guess I'm in the clear. They're still going to do a follow up ultrasound in a couple months, but at least I don't need surgery atm.

My mom had bad cysts when she was younger and had to have an ovary removed. Doctors told her it would be hard to get pregnant again after that but she had 5 more kids in an 8 year span. Not sure if that helps, but I hope everything goes well for you!

Yes! Endometriosis is horrible. I read somewhere hat it's sometimes considered one of the top ten most painful diseases. I dealt with pain for 6 years before a doctor even mentioned endometriosis. And we're supposed to trust these "medical professionals"

I have them as well, one of both side. They also kept dismissing me but I have other issues as well and while searching for those they were finally found. I have pain in my right on and the doctors have told me they wont remove them because they have not gotten large enough. I think one is 3cm and the other is 6cm. I actually think I'm pregnant right now but I'm waiting to take a test here is a few days. I don't think they cause too much issues with me at least. They said that it was caused by an egg not being released at ovulations and just continuing to build. I got conflicting advice from different doctors though.

I thought I had a cyst but it was a tumor on my ovary. It doubled in size from June to October (2.5 to 5 cm) it was benign and removed along with my ovary. Since it's been removed I've felt much better!

I've been down that road. I had a cyst on my left ovary and they think I may have endometriosis. At the time, my doctor put me on birth control to help relive any pain and abnormal periods. I've recently come off the bc this past June. So far I haven't had any problems, but I'm just hoping it doesn't cause me anymore pain.

In May I just had major stomach surgery to remove fibroids and such, and lord have mercy, I had started swelling and couldn't fit into my dress, in July when I went to my alterations appointment, I lost 2 dress sizes, so now I needed a new dress, it wasn't in stock and had to be ordered. Long story short, new dress was delivered in August and the only alterations I needed was the bustle installed, I will keep you in my prayers, good luck!